Bibliography: Palliative Sedation

Editor's Note: The following is an updated version of a bibliography published in the Summer 2011 issue of Health Care Ethics USA. It is being included here as a follow-up to the CHA webinar on palliative sedation on April 29, 2014.

Baumrucker, S.J., Craig, G., Stolick, M., Morris, G.M., Sheldon, J., "Case Study: Sedation for Palliation of Terminal Symptoms (SPTS), and Nutrition and Hydration at End of Life," American Journal of Hospice and Palliative Care 22, no. 2 (March-April 2005):153-7.

Berger, J.T., "Rethinking Guidelines for the Use of Palliative Sedation," Hastings Center Report 40, no. 3 (May-June 2010):32-8.

Boyle, J., "Medical Ethics and Double Effect: The Case of Terminal Sedation," Theoretical Medicine and Bioethics 25, no. 1 (2004):51-60.

Broeckaert B., "Palliative Sedation, Physician-Assisted Suicide, and Euthanasia: 'Same, Same but Different?'" American Journal of Bioethics 11, no. 6 (June 2011):62-4.

Cassell, E.J., Rich, B.A., "Intractable End-of-Life Suffering and the Ethics of Palliative Sedation," Pain Medicine 11, no. 3 (March 2010):435-8.

Cavanaugh, T.A., "Currently Accepted Practices That Are Known to Lead to Death and PAS: Is There an Ethically Relevant Difference?," Cambridge Quarterly of Healthcare Ethics 7 (1998):375-81.

Cellarius, V., "Terminal Sedation and the "Imminence Condition"," Journal of Medical Ethics 34, no. 2 (Feb. 2008):69-72.

Cellarius, V., Henry, B., "Justifying Different Levels of Palliative Sedation," Annals of Internal Medicine 152, no. 5 (March 2, 2010):332; author reply 333

Chater, S. and R.V., Paterson, J., Jarvis, V., "Sedation for Intractable Distress in the Dying — A Survey of Experts," Palliative Medicine 12 (July 1998):255-69.

Cherny, Nathan, "Palliative Sedation, UpToDate (Feb. 24, 2014): 1-21.

Cherny, N.I., Portenoy, R.K., "Sedation in the Management of Refractory Symptoms: Guidelines for Evaluation and Treatment," Journal of Palliative Care 201 (1994):71-79.

Cherny, N.I., Radbruch, L., Board of the European Association for Palliative Care, "European Association for Palliative Care (EAPC) Recommended Framework for the Use of Sedation in Palliative Care," Palliative Medicine 23, no. 7 (Oct. 2009):581-93.

Claessens, P., Menten, J., Schotsmans, P., Broeckaert, B., "Palliative Sedation: A Review of the Research Literature," Journal of Pain and Symptom Management 36, no. 3 (Sept. 2008):310-33.

Claessens, P., Menten, J., Schotsmans, P., Broeckaert, B.; on behalf of the Palsed Consortium, "Palliative Sedation, Not Slow Euthanasia: A Prospective, Longitudinal Study of Sedation in Flemish Palliative Care Units," Journal of Pain and Symptom Management (Sept. 9, 2010).

Curlin, F.A., Nwodim, C., Vance, J.L., Chin, M.H., Lantos, J.D., "To Die, To Sleep: U.S. Physicians' Religious and Other Objections to Physician-Assisted Suicide, Terminal Sedation, and Withdrawal of Life Support," American Journal of Hospice and Palliative Care 25, no. 2 (April-May 2008):112-20.

Davis, M.P., Ford, P.A., "Palliative Sedation Definition, Practice, Outcomes, and Ethics," Journal of Palliative Medicine 8, no. 4 (August 2005):699-701; author reply 702-3.

Deijck van, Rogier et al., "Determinants of the Administration of Continuous Palliative Sedation: A Systematic Review," Journal of Palliative Medicine 16, no. 12 (Dec. 2013): 1624-32.

Diamond, E.F., "Terminal Sedation," Linacre Quarterly 73, no. 2 (May 2006):172-5.

de Graeff, A., Dean, M., "Palliative Sedation Therapy in the Last Weeks of Life: A Literature Review and Recommendations for Standards," Journal of Palliative Medicine 10, no. 1 (Feb. 2007):67-85.

Eberl, J.T., "Aquinas on Euthanasia, Suffering, and Palliative Care," National Catholic Bioethics Quarterly 3, no. 2 (Summer 2003):331-54.

Gates, L.K. Jr., "Palliative Treatment of Last Resort and Assisted Suicide," Annals of Internal Medicine 133, no. 7 (Oct. 3, 2000):563-4.

Hauser, K., Walsh, D., "Palliative Sedation: Welcome Guidance on a Controversial Issue," Palliative Medicine 23, no. 7 (Oct. 2009):577-9.

Have ten, Henk and Jos Welie, "Palliative Sedation Versus Euthanasia: An Ethical Assessment," Journal of Pain and Symptom Management 47, no. 1 (Jan. 2014): 123-36.

Henry, B., Dean, M., Cellarius, V., Librach, L., Oneschuk, D., "To 'Sleep Until Death,'" Hastings Center Report 41, no. 1 (Jan.-Feb. 2011):4; author reply 4-5.

Jansen, L.A., "Disambiguating Clinical Intentions: The Ethics of Palliative Sedation," Journal of Medicine and Philosophy 35, no. 1 (Feb. 2010):19-31.

Jansen, L.A., "Intractable End-of-Life Suffering and the Ethics of Palliative Sedation: A Commentary on Cassell and Rich," Pain Medicine 11, no. 3 (March 2010):440-1; discussion 442.

Jansen, L.A., "The Moral Irrelevance of Proximity to Death," Journal of Clinical Ethics 14, no. 1-2 (Spring-Summer 2003):49-58.

Kassabian, S., "Palliative Sedation and Physician-Assisted Death," Journal of Palliative Medicine 11, no. 6 (July 2008):821.

Kenny, N.P., Frager, G., "Refractor Symptoms and Terminal Sedation of Children: Ethical Issues and Practical Management," Journal of Palliative Care 12 (Autumn 1996):40-5.

Kirk, T.W., Mahon, M.M.; Palliative Sedation Task Force of the National Hospice and Palliative Care Organization Ethics Committee, "National Hospice and Palliative Care Organization (NHPCO) Position Statement and Commentary on the Use of Palliative Sedation in Imminently Dying Terminally Ill Patients," Journal of Pain and Symptom Management 39, no. 5 (May 2010):914-23.

Koh, Y.H., Lee, O.K., Wu, H.Y., ""Palliative" and Not "Terminal" Sedation," Journal of Pain and Symptom Management 37, no. 4 (April 2009):e6-8.

Kon, A., "Palliative Sedation: It's Not a Panacea," American Journal of Bioethics 11, no. 6 (June 2011): 41-42.

Krakauer, E.L., "Responding to Intractable Terminal Suffering," Annals of Internal Medicine 133, no. 7 (October 3, 2000):560; author reply 561-2.

Krizek, T.J., Pellegrino, E.D., Portenoy, R.K., "Palliative Treatment of Last Resort and Assisted Suicide," Annals of Internal Medicine 133, no. 7 (Oct. 3, 2000):562-3.

Lo, B., Rubenfeld, G., "Palliative sedation in dying patients: "we turn to it when everything else hasn't worked,"" JAMA 294, no. 14 (Oct. 12, 2005):1810-6.

Maltoni, Marco et al., "Palliative Sedation in End-of-Life Care," Current Opinions in Oncology 25, no. 4 (July 2013): 360-367.

Materstvedt, L.J., Bosshard, G., "Deep and Continuous Palliative Sedation (Terminal Sedation): Clinical-Ethical and Philosophical Aspects," Lancet Oncology 10, no. 6 (June 2009):622-7.

Morita, T., "Palliative Sedation to Relieve Psycho-Existential Suffering of Terminally Ill Cancer Patients," Journal of Pain and Symptom Management 28, no. 5 (Nov. 2004):445-50.

Muller D., "Re: NHPCO Position Statement on Palliative Sedation," Journal of Pain and Symptom Management 40, no. 3 (Sept. 2010):e8-9.

National Ethics Committee, Veterans Health Administration, "The Ethics of Palliative Sedation as a Therapy of Last Resort," American Journal of Hospice and

Palliative Care 23, no. 6 (Dec. 2006-January 2007):483-91. Review.

Olsen, M.L., Swetz, K.M., Mueller, P.S., "Ethical Decision Making with End-of-Life Care: Palliative Sedation and Withholding or Withdrawing Life-Sustaining Treatments," Mayo Clinic Proceedings 85, no. 10 (Oct. 2010):949-54.

Quill, T.E., Lo, B., Brock, D.W., Meisel, A., "Last-Resort Options for Palliative Sedation," Annals of Internal Medicine 151, no. 6 (Sept. 15, 2009):421-4.

Rady, M.Y., Verheijde, J.L., "Continuous Deep Sedation Until Death: Palliation or Physician-Assisted Death?," American Journal of Hospice and Palliative Care 27, no. 3 (May 2010):205-14.

Rady, M.Y., Verheijde, J.L., "Sedation for the Imminently Dying: Survey Results from the AAN Ethics Section," Neurology 75, no. 19 (Nov. 9, 2010):1753; author reply 1753-4.

Rietjens, J.A., van Delden, J.J., Deliens, L., van der Heide, A., "Re: Palliative Sedation: The Need for a Descriptive Definition," Journal of Pain and Symptom Management 37, no. 3 (March 2009).

Rousseau, P., "Existential Suffering and Palliative Sedation: A Brief Commentary with a Proposal for Clinical Guidelines," American Journal of Hospice and Palliative Care 18 (May-June 2001):151-3.

Rousseau, P., "Terminal Sedation in the Care of Dying Patients." Archives of Internal Medicine 156 (Sept. 9, 1996):1785-86.

Rousseau, P., "The Ethical Validity and Clinical Experience of Palliative Sedation," Mayo Clinic Proceedings 75 (Oct. 2000):1064-9.

Russell, J.A., Williams, M.A., Drogan, O., "Sedation for the Imminently Dying: Survey Results from the AAN Ethics Section," Neurology 74, no. 16 (April 2010):1303-9.

Sanft, T., Hauser, J., Rosielle, D., Weissman, D., Elsayem, A., Zhukovsky, D.S., Coyle, N., "Physical Pain and Emotional Suffering: The Case for Palliative Sedation," Journal of Pain 10, no. 3 (March 2009):238-42. E-pub December 19 2008.

Schildmann, J. and E. Schildmann, "Clinical and Ethical Challenges of Palliative Sedation Therapy. The Need for Clear Guidance and Professional Competencies," The International Journal of Clinical Practice 67, no. 11 (Nov. 2013): 1086-88.

Simon, A., Kar, M., Hinz, J., Beck, D., "Attitudes Towards Terminal Sedation: An Empirical Survey Among Experts in the Field of Medical Ethics," BMC Palliative Care 6 (April 16, 2007):4.

Stewart, T.L., "To Sleep Before We Die. .. : When is Palliative Sedation an Option for the Dying Person?," Journal of Palliative Medicine 11, no. 1 (Jan.-Feb. 2008):131-2.

Sulmasy, D.P., Curlin, F., Brungardt, G.S., Cavanaugh, T., "Justifying Different Levels of Palliative Sedation," Annals of Internal Medicine 152, no. 5 (March 2, 2010):332-3; author reply 333.

Sulmasy, D.P., Ury, W.A., Ahronheim, J.C., Siegler, M., Kass, L., Lantos, J., Burt, R.A., Foley, K., Payne, R., Gomez, C.,

Sulmasy, D.P., Ury, W.A., Ahronheim, J.C., Siegler, M., Kass, L., Lantos, J., Burt, R.A., Foley, K., Payne, R., Gomez, C., Krizek, T.J., Pellegrino, E.D., Portenoy, R.K., "Publication of Papers of Assisted Suicide and Terminal Sedation," Annals of Internal Medicine 133 (Oct. 2000):564-6.

Sulmasy, D.P., Ury, W.A., Ahronheim, J.C., Siegler, M., Kass, L., Lantos, J., Burt, R.A., Foley, K., Payne, R., Gomez, C., Krizek, T.J., Pellegrino, E.D., Portenoy, R.K., "Responding to Intractable Terminal Suffering," Annals of Internal Medicine 133, no. 7 (Oct. 3, 2000):560-2; disc 561-2.

Swart, S.J., Brinkkemper, T., Rietjens, J.A., Blanker, M.H., van Zuylen, L., Ribbe, M., Zuurmond, W.W., van der Heide, A., Perez, R.S., "Physicians' and Nurses' Experiences with Continuous Palliative Sedation in the Netherlands," Archives of Internal Medicine 170, no. 14 (July 26, 2010):1271-4.

Sykes, N., Thorns, A., "Sedative Use in the Last Week of Life and the Implications for End-of-Life Decision Making," Archives of Internal Medicine 163, no. 3 (Feb. 10, 2003):341-4.

Truog, R., et. al., "Barbiturates in the Care of the Terminally Ill," New England Journal of Medicine 327 (Dec. 3, 1992):1678-82.

van der Hoven, B., de Groot, Y.J., Thijsse, W.J., Kompanje, E.J., "What To Do When a Competent ICU Patient Does Not Want to Live Anymore But Is Dependent on Life-Sustaining Treatment? Experience from the Netherlands," Intensive Care Medicine 36, no. 12 (Dec. 2010):2145-8.

Vissers, K.C., Hasselaar, J.G., "Palliative Sedation: Need for Consensus Guidelines and Standards: Comment on 'Continuous Deep Sedation until Death in Belgium: A Nationwide Survey," Archives of Internal Medicine 170, no. 5 (March 8, 2010):494-5.

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